Order your 2018/19 Entertainment Books now!

Published: March 3, 2018  ~   0

You can now purchase your 2018 | 2019 Entertainment Membership here! Not only will you receive 25 to 50% off and 2-for-1 offers many of the best restaurants, hotels, hire cars, retail shopping and attractions in your area but you’ll be supporting FOP Australia.

PLUS, order now to receive over $150 of bonus Early Bird Offers (hurry, these sell out quickly).

Wherever you live in Australia or New Zealand, there is a book for you! Going on an interstate holiday? Your savings on accomodation or hire cars alone would make this purchase pay for itself… and then you can go out to celebrate (and save more money!).

Queensland
  • Brisbane, Sunshine Coast and Surrounds
  • Townsville
  • Gold Coast and Northern NSW
  • Cairns, Palm Cove and Port Douglas
Victoria
  • Melbourne
  • Geelong and Ballarat
South Australia
  • Adelaide (includes the Hills, Kangaroo Island, Clare Valley, Barossa Valley, McLaren Vale and Victor Harbour)
NSW/ACT
  • Sydney and Surrounds
  • Sydney Greater West
  • Wollongong, The South Coast and Southern Highlands
  • Newcastle, Central Coast and the Hunter
  • Canberra
  • Gold Coast and Northern NSW
NT
  • Darwin
Tasmania
  • Hobart and Surrounds
  • Launceston, North West Tasmania and Surrounds
Western Australia
  • Perth (includes Bali)
New Zealand
  • Auckland
  • Waikato and Bay of Plenty
  • Wellington and Manawatu
  • South Island
  • Queenstown
  • Dunedin, Invercargill and Queenstown
International
  • Bali
  • Perth book also includes Bali vouchers

 

FOP Australia Eco-Cups available online now!

Published: January 19, 2018  ~   0

FOP Australia are excited to launch our first official piece of merchandise – our new reusable Eco-Cups are now available for purchase online!

  • Show your support for those living with Fibrodysplasia Ossificans Progressiva!
  • Help save the environment while you help FOP research, by avoiding disposable takeaway cups!
  • Our website address is on the cup, so admirers of your stylish new cup can also learn about FOP!
  • These 350mL  reusable BPA-free cups have a heat-resistant silicon band, tight sealing lid, are microwave friendly and fit standard cup holders

Our new Eco-Cups are the easiest way to help FOP research, show your support, promote FOP information and help the environment! And all before you finish your morning cuppa! For only $15* each this is your chance to show friends and family an easy way that they can support groundbreaking research and people living with FOP. (*plus postage and handling)

Eco-Cups can also be bought in person from FOP Australia board members, if nearby, with no postage costs. We also welcome opportunities to sell these at your local cafe and encourage interested cafes to contact info@fopaustralia.org. As this is our first piece of merchandise we have ordered conservatively, so get in now while stocks last! Or receive a complimentary FOP Australia Eco-Cup when you join our 2019 Coffee Club program.

Larger orders are welcome via email to info@fopaustralia.org. Please note our postage and handling charges reflect an estimate of Australia Post cost, which can vary by postcode of recipient for orders over 500g (3 cups or more). You will only be charged the amount quoted above, even if final postage costs exceed this.

Total:

Your contact details will never be shared with a third party. Payment via credit card will be processed via our secure online facility. No payment details will be viewed or stored by FOP Australia.

Join the 2018 Coffee Club online today!

Published: January 1, 2018  ~   0

**UPDATE 31/12/18: The 2018 Coffee Club has now closed. But you can still sign up for 2019 using the form below. Thank you for your support of people with Fibrodysplasia Ossificans Progressiva**

 

This year we are launching a new initiative where you can help the fight to beat FOP for the price of a takeaway coffee each week.

The FOP Australia Coffee Club is a planned giving program where you commit to give just $5 for each week of the year towards research and support activities to improve the lives of people living with Fibrodysplasia Ossificans Progressiva. In just a few clicks you can sign up online here for your donations to be deducted automatically each month in 2018. Donations are tax deductible and receipts will be issued automatically each time.

As a thank you for your generosity, after you sign up you will receive one of our popular reusable FOP Australia Eco-Cups! You will also receive thank you notes throughout the year with updates to show what your donations help achieve.

Please note:
– Secure online payment facility is provided by Stripe. Payment details are secure and are not viewed or stored by FOP Australia.
– Recurring donations of any amount can also be set up any time through our GiveNow facility
Manual  Coffee Club forms are also available upon request through info@fopaustralia.org if preferred.
– FOP Australia Eco-Cups are also available for individual sale online here

Join here now and make a difference in 2018, in less time than it takes to make a cuppa!

Once you enter your payment details at our secure online payment facility, $20 per calendar month will be automatically transferred for each remaining calendar month of this year. Maximum total cost $240. Your payment details will not be viewed or stored by FOP Australia. Your contact details will not be released to any third party.

 

CharityBuy: Save, shop and #cureFOP!

Published: November 18, 2017  ~   0

We are excited to launch our new partnership with CharityBuy, where you can shop from a huge range of stores online and make your purchases work for FOP Australia!

All you need to do is click on the link to your chosen online store on the CharityBuy page, and start shopping!

The CharityBuy page tells you how much of your purchase will go to FOP Australia, and also includes special offers. So not only can you support those with FOP at no extra cost to you, you could actually save money!

Woolworths, David Jones, Amcal, Spotlight, Bonds, Angus and Robertson, Aussie Farmers Direct, Australia Geographic, Avis, Bed Bath and Table, Berlei, Bonds, Betta, Bobbi Brown, Booktopia, Budget, CAT workwear, Chemist Warehouse, Clarks, Clinique, David Lawrence, Dotti, Edible Blooms, Esprit, Estee Lauder, Etsy, Expedia, Freedom, Hard Yakka, Interflora, Jo Mercer, Lorna Jane, Microsoft, Sportscraft, Sony, Webjet, Zanui…. These are just SOME of the hundreds of online stores that will donate a percentage of your Xmas shopping to FOP Australia if you use this CharityBuy link  (or select us as your chosen charity from the CharityBuy.com.au homepage)

The huge range offers you lots of opportunities to help FOP Australia just by doing your normal shopping all year round, or to help you feel good about buying some extra treats in time for Christmas!

http://www.charitybuy.com.au/fop-australia

FOP Australia donates $30,000AUD to #cureFOP!

Published: October 2, 2017  ~   0

Because of your support, FOP Australia are proud to announce a donation of $25,000AUD to the International FOP Association to further FOP research. With potential therapies being trialled, now is a critical time in the global research effort and your donations will help make sure that precious opportunities do not get missed.

As we significantly exceeded our fundraising target of $10,000 for IFOPA during the last two quarters of 2016/17, FOP Australia are also donating $5,000AUD to the Shore Lab at the University of Pennsylvania. This will help support their ongoing research into understanding the disease process, which will guide the ongoing search for a cure.

Recognising the need to provide support to the FOP community now, as well as funding research for the future, FOP Australia have also dedicated $3000 from funds raised during the 2016/17 year towards funding support activities. We are currently creating a grant framework so that community members can apply for assistance through a transparent and fair process. We hope to establish this by the end of 2017 so stay tuned!

THANK YOU for making this happen. Thank you for donating, for liking and sharing Facebook posts, running fun runs, competing at quiz nights, decorating nails, buying (and selling!) Entertainment Books, becoming a member, and helping spread the word. We are a small organisation and every bit makes a difference. By digging deep to give your time, money and and effort to #cureFOP, you also give hope to people with FOP. We cant wait to see what we can achieve together in 2017/18!

Fundraising Frenzy!

Published: April 2, 2017  ~   0
Australia dances, runs and decorates nails to #cureFOP

Because of your support, FOP Australia raised over $5000 for FOP research during February and March. This was the result of a diverse range of activities all over the country, and contributions from hundreds of people. Every contribution, whatever size, is hugely appreciated as a sign of support for those with FOP.

  • Kicking off with the first fundraiser of 2017, Tyson Stanley and his mates organised a superhero themed disco in Somerville on February 11. ‘Tyso and Gypsy’s Marvel-ous Marvel vs DC disco’ raised $538. Thank you Tyson and team!
  • Shan Carty ran an online Jamberry fundraiser during February, including a Facebook party on Rare Disease Day to connect our supporters across the country. Thank you for helping Shan raise $941, meeting the aim of beating last year’s total of $902!
  • A fundraiser that everyone in Australia and NZ can get behind is 2017/18 Entertainment Books. Opening in March, by the end of the month this had already raised $114 online, with sales open for several months yet. Thank you Amy Ellingworth and Lara Boniface for their ongoing work on this fundraiser.
  • FOP Australia has also been very lucky to receive over $600 through direct donations using the ‘Donate Now’ buttons on our website and Facebook page. We were particularly excited to see our first regular monthly donation set up through this facility!
  • A lovely surprise was the $970 raised by the Peninsula City Church in Victoria at a quiz night on the 17th March. Our treasurer Talia Wilson attended on behalf of the FOP Australia board to thank everyone for their contributions.
  • The 12km Bay-City fun run was the first FOP Australia fundraiser in South Australia. $2010 was donated to our team of eight runners and walkers who completed the 12km course in t-shirts promoting our organisation. If there is a fun run near you that you would like to use as a way to support FOP Australia, we would love to help you!

The Bay-City fun run was also the first time we have used our new ‘mycause’ platform. The mycause platform makes it easy for our supporters to fundraise using events or ideas of any size, whether it raises $20 or $20,000! As well as making it easier to manage funds for large events, it can also help people create gift cards, accept donations for FOP in lieu of birthday/anniversary gifts, or support individual pledges. This is an exciting new development for FOP Australia to help us expand our range and type of fundraising activities. If you have ideas or questions about mycause, please get in touch at info@fopaustralia.org.

Remember, all donations over $2 are tax deductible, and our ‘Donate Now’ and mycause facilities automatically generate and email tax receipts directly.

As outlined in our 2016/17 strategic plan we aim to make a $10,000 contribution to the global FOP research effort at the end of this financial year through the International FOP Association. IFOPA ensure that our hard-earned and highly valued donations are directed to support high-quality research necessary to further the fight to cure FOP. So far we are on track to meet this goal, THANK YOU!

Photos clockwise from top of map: Jamberry fundraiser afternoon tea in Broome WA, Entertainment Book image, Tyson Stanley with family and friends at his disco in Somerville Victoria, the Bay-City team prepare in Adelaide, SA.

Bay-City Fun Run 19th March (Adelaide)

Published: March 3, 2017  ~   0

The Bay-City fun run turns the traditional Adelaide City-Bay on its head, and sees thousands of South Australians walk or run 4.5km or 12km  from Glenelg to Adelaide Oval on 19th March.

This year FOP Australia will be represented by a team of dedicated fundraisers. Anyone is welcome to join our team, to run/walk 4.5km or 12km. Running experience and skill are not required, just a willingness to give it a go and raise awareness and money for a cure for FOP!

Event information is available online at the Bay-City website, where you can also register to join us by selecting FOP Australia as your team.

To support our runners in the Bay-City please donate online on our mycause page for this event here .

If you are interested in raising money for FOP Australia through a running event, we would love to support you! Please contact us at info@fopaustralia.org.

Jamberry Online Fundraiser!

Published: February 3, 2017  ~   0

Shan Carty, Independent Consultant for Jamberry, is once again kindly donating her time and profits to us by organising an online fundraising event this month.

Jamberry sells high quality durable nail wraps and a variety of professional nail lacquers, gel enamels and nail care products.

Last year lots of FOP Australia members discovered the fun and easy to use products when Shan organised our first ever online fundraising event, raising $902.

Shan is hosting an online Facebook party for FOP Australia on February 28th to raise money for Rare Disease Day. Last year the online party was a huge success, lots of fun and super easy to join in, so we hope you can join us this year and help us beat last year’s total! Make sure you follow us on Facebook so you don’t miss the party!

But you don’t need to wait! From now until March 6th you can buy Jamberry products at shancarty.jamberry.com and by selecting the ‘FOP Australia Fundraiser Party’ at checkout all profits will go to FOP Australia!

What is Rare Disease Day?

Published: February 1, 2017  ~   0

International Rare Disease Day takes place on the last day of February each year to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. It is a public campaign and also seeks to raise awareness amongst policy makers, public authorities, researchers, health professionals and anyone who has a genuine interest in rare diseases.

Rare Disease Day events are run by hundreds of patient organisations all over the world that work on a local and national level to raise awareness for the rare disease community in their countries. The campaign was launched by EURORDIS as a European event and has progressively become a world phenomenon, with participation in over 80 countries in 2016. On rarediseaseday.org you can find information about the thousands of events happening around the world.

FOP Australia would love you to join our online fundraising Jamberry party to mark the day. But we also encourage members to…

  • find an event nearby
  • hold their own local event to raise awareness and funds for rare disease research
  • share the logo
  • use the the logo, profile picture, or banner on your Facebook page on Rare Disease Day
  • use the email signature for all your emails during February
  • learn more at rarediseaseday.org
  • share this information on social media to help get give rare diseases a voice!

Information and logo by EURORDIS from rarediseaseday.org used here in keeping with their stated Conditions of Use. 

Somerville Fundraising Disco February 11th (Victoria)

Published: January 22, 2017  ~   0

FOP Australia member Tyson Stanley is working hard to get ready for  “Tyso and Gypsy’s Marvel-ous Marvel vs DC Disco” at the Somerville Scout Hall on February 11th.

16 year old Tyson has already organised several disco events, and we are very excited that this year he has chosen to donate proceeds from the event to FOP Australia.

Dress up as your favourite Marvel or DC character to join in the fun and maybe even win a prize! Food, drinks and glow products will be available for purchase. There will also be an appearance by FOX Racing team member Jayo Archer.

Entry is only $5 for 1 (or $15 for 4, $20 for 5, or $25 for 6). So if you are in Victoria, get along to the Somerville Scout Hall in Clarinda St from 6pm to show your support, have fun, and win some prizes!

Thank you Tyson for your hard work – we hope you have a great night!