As part of our goal to support people living with Fibrodysplasia Ossificans Progressiva, FOP Australia’s Support Grant Program enables people with FOP (or their direct caregivers) to apply for direct financial support for items or activities that help them live with FOP. Although 90% of of the money FOP Australia has raised so far as gone to research, in 2019 we also launched this support grant program in order to fulfil this goal.
The Terms Of Reference for the program were revised and updated by the board in December 2022. The changes include a decision to keep the application process open continuously, rather than holding grant rounds (which was the initial process). Please read through the full Terms of Reference before applying.
Details on how to submit applications will be sent directly to people with FOP and their direct caregivers through the contact details registered with FOP Australia. Queries about the program should be sent to the returning officer at fopgrantprogram@gmail.com.
We are grateful for the selection panel members who have donated their time to this program:
- Dr Felicity Collins, Geneticist, Sydney Children’ Health Network
- Mrs Georgie Hyder, Occupational Therapist, Central and Northern Adelaide Health Service
- Ms Michelle Davis, Executive Director, International FOP Association
We are also very grateful for the work of our volunteer returning officer, Jada Carr, who administers the application process.
Thank you Cody who kindly shared this photo of him using the new ramp built using a FOP Australia Support Grant.
Thank you to Ollie for sharing this picture with his new lightweight laptop to help with work and writing his blog on life with FOP
Thank you to Lyn for sharing this picture of her new Iphone (and great hair!) to help her remain connected with family and friends