February 2019 Newsletter: Rare Disease Day, merchandise, IFOPA Biobank, and more!

Check out our new-look newsletter here, out just in time for Rare Disease Day on February 28th!

Includes updates on:

  • IFOPA Biobank
  • Rare Disease Day
  • New online merchandise
  • Our first Bunnings BBQ
  • How to join our fundraising co-ordinating team

Have you got a story for our next edition? Contact us at info@fopaustralia.org – we would love to hear from you.


NEW merchandise available online!

Choose from a wide selection of items including polo shirts, caps, bags and hoodies to show your support and help raise awareness about Fibrodysplasia Ossificans Progressiva in our  brand new online store! 

When you wear one of these FOP Australia’s print-to-order designs you help raise awareness about Fibrodysplasia Ossificans Progressiva, and 10% from every sale comes straight to FOP Australia. New designs can be created for you, and tailored for upcoming fundraising events, or just to suit your style! We would love to hear your ideas at info@fopaustralia.org. We would also love to work with you to plan ideas for bulk orders of merchandise items to help spread the word further.

Recognising that many people with FOP have difficulty wearing many clothing items because of the disease, one of our wonderful supporters is an experienced seamstress who is willing to donate her time and materials to modify any of these items for people with FOP after purchase. (Specific individualised instructions will be required, and best to get in touch and discuss before ordering.) 

Our very popular Eco-cups are also still available for purchase for $15 here, with 100% of the purchase price going to FOP Australia.

Order your merchandise now so that you have it ready for FOP Awareness Day on 23rd April!