FOP Australia are proud to share our Annual Report for 2022/2023. This includes an overview of our achievements and challenges, financial statements, a report from our IFOPA International Presidents’ Council representative, and a summary of the year in medical research.
We are especially to proud to share the news that because of the generosity and support of people throughout Australia and New Zealand, FOP Australia has again been able to allocate funds from FY23 to:
- Supporting the IFOPA In Pursuit of.a Cure campaign for gene therapy research
- Contributing to the IFOPA ACT for FOP competitive research grant program
- Continuing support for the Shore Lab at University of Pennsylvania, and their ongoing foundational science research
- Planning a future Australia/New Zealand patient gathering (for the first time since 2016!)
- Funding the Support Grant Program
- Funding the Oliver Collins Education Grants
- and of course, a small amount (5%) goes towards operational costs to keep our organisation running in accordance with ACNC and other regulatory requirements.
We look forward to the opportunity to discuss this report with members at the Annual General Meeting on Monday 9th October at 8pm AEST. Notice of the AGM has been sent to all members via email (please contact info@fopaustralia.org to confirm your contact details if you are a member who has not yet received this) .
Thank you to everyone who has contributed in any way to the work of our charity to support people with Fibrodysplasia Ossificans Progressiva. Apart from the financial contributions above, we hope that by creating opportunities for connecting people we can foster a supportive network for people with FOP in Australia and New Zealand.