Happy New Year 2018!

Thank you for all your support during 2017 – you helped FOP Australia smash fundraising goals, build support networks in our community, and help groundbreaking research! 2018 will be an exciting and critical year in the effort to find a cure for FOP, with three clinical trials underway globally, including the phase III palovarotene trial planned to open in Australia!

Sadly though, the new year also brings a reminder that every single year people with Fibrodysplasia Ossificans Progressiva can lose mobility, independence, and even their lives. Every year without a treatment means progression of this devastating disease, and is a reminder that we are racing the clock to find a cure.

FOP Australia need your support today. There will be a range of fundraisers throughout the year (including a brand new initiative launching this week!), and we would love to add your fundraising ideas too! If you can donate, any amount is welcome and greatly appreciated. If you are not able to donate, share/like/tweet our news and invite your friends to our fundraisers, website or Facebook page. Or contact us and we will help you find a way your skills and time can help in the fight to #cureFOP.


Member Newsletter Issue 4 out now!

Our last newsletter of 2017 is now available here, and will be emailed to all members today.

In this issue…

  • FOP Australia Coffee Club: Help #cure FOP for the cost of a coffee a week!
  • Building our capacity for advocacy: Finding our voice with Rare Voices Australia
  • Research news: Your supports funds research into new FOP therapies!
  • Introducing the board: Meet the team for 2017/18

FOP Australia publishes quarterly newsletters, and welcomes contributions from members, supporters, clinicians and sponsors at info@fopaustralia.org.


Annual Report 2016/17

FOP Australia are proud to release the  Annual Report for financial year 2016/17.

During the 2016/17 year:

Read more in the report, which includes our financial statements and independent auditor’s report, and ideas for how you can help.

As part of our ongoing strategic planning and commitment  to accountability, the key performance indicators we have set for the 2017/18 year are also available online here.

Thank you again for your support in 2016/17, and for continuing to support us in 2017/18!