The International Clinical Council of FOP and consultants have released a new edition of The Medical Management of Fibrodysplasia Ossificans Progressiva: Current Treatment Considerations.
In the accompanying editorial, corresponding authors Prof Fred Kaplan and Dr Robert Pignolo emphasise that “this document reflects the authors’ experience and opinions on the various topics and classes of symptom-modifying medications, and is meant only as a guide to this area of therapeutics for an ultra-rare condition for which evidence-based information is limited”.
This replaces the previous edition released in 2011, which has been a valuable resource for families and clinicians around the world. The authors note that “With ongoing clinical trials and additional ones on the horizon, we anticipate that this document will be updated annually – more frequently if needed.”
FOP Australia are very grateful for the work of the ICC, and will be sending a copy of the new edition directly to all the FOP families and clinicians registered with us over the coming days. Please note that this document can also be accessed by the permanent ‘Medical Treatment Guidelines’ link visible at the top of every page of this website.
