International Rare Disease Day takes place on the last day of February each year to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. It is a public campaign and also seeks to raise awareness amongst policy makers, public authorities, researchers, health professionals and anyone who has a genuine interest in rare diseases.
Rare Disease Day events are run by hundreds of patient organisations all over the world that work on a local and national level to raise awareness for the rare disease community in their countries. The campaign was launched by EURORDIS as a European event and has progressively become a world phenomenon, with participation in over 80 countries in 2016. On rarediseaseday.org you can find information about the thousands of events happening around the world.
FOP Australia would love you to join our online fundraising Jamberry party to mark the day. But we also encourage members to…
- find an event nearby
- hold their own local event to raise awareness and funds for rare disease research
- share the logo
- use the the logo, profile picture, or banner on your Facebook page on Rare Disease Day
- use the email signature for all your emails during February
- learn more at rarediseaseday.org
- share this information on social media to help get give rare diseases a voice!
Information and logo by EURORDIS from rarediseaseday.org used here in keeping with their stated Conditions of Use.