FOP Australia donates $30,000AUD to #cureFOP!

Because of your support, FOP Australia are proud to announce a donation of $25,000AUD to the International FOP Association to further FOP research. With potential therapies being trialled, now is a critical time in the global research effort and your donations will help make sure that precious opportunities do not get missed.

As we significantly exceeded our fundraising target of $10,000 for IFOPA during the last two quarters of 2016/17, FOP Australia are also donating $5,000AUD to the Shore Lab at the University of Pennsylvania. This will help support their ongoing research into understanding the disease process, which will guide the ongoing search for a cure.

Recognising the need to provide support to the FOP community now, as well as funding research for the future, FOP Australia have also dedicated $3000 from funds raised during the 2016/17 year towards funding support activities. We are currently creating a grant framework so that community members can apply for assistance through a transparent and fair process. We hope to establish this by the end of 2017 so stay tuned!

THANK YOU for making this happen. Thank you for donating, for liking and sharing Facebook posts, running fun runs, competing at quiz nights, decorating nails, buying (and selling!) Entertainment Books, becoming a member, and helping spread the word. We are a small organisation and every bit makes a difference. By digging deep to give your time, money and and effort to #cureFOP, you also give hope to people with FOP. We cant wait to see what we can achieve together in 2017/18!