Member Newsletter Issue 7: September 2018

Published: September 6, 2018  ~   0

In this edition  of our quarterly member newsletter:

  • $45,000 to life-changing research: How your donations will help the research effort
  • Mylan employees launch payroll giving program for FOP Australia: A new initiative launched by a generous new supporter
  • Research news: An update from A/Prof Ed Hsiao about a FOP Australia sponsored project at UCSF
  • Fundraising fun across the country: Thank you to all the amazing supporters who have got behind over a dozen fundraising events so far in 2018 in communities around the country
  • Advocating for FOP awareness: Ollie, Tyson and Jarvis share their stories
  • Lyn’s big (P!NK) night out!: We say hi to FOP champion Lyn Smith
  • Operation:  Send Tyson to Comic-Con: A superhero effort gives Tyson Stanley the trip of a lifetime
  • Renew your membership for 2018/19: Sign up online in just a few clicks (right here!)

 

Read previous newsletters here, and learn more about our 2018/19 goals on our Aims page.

$45,000 donated to FOP research from 2017/18 fundraisers!

Published: September 2, 2018  ~   0

Because of your generous support FOP Australia’s fundraising goal for 2017/18 was exceeded, enabling donations of $45,000 AUD to groundbreaking Fibrodysplasia Ossificans Progressiva research!

By working with IFOPA and engaging directly with researchers, FOP Australia make sure that your donations go towards the work that most effectively progresses the research effort towards a cure for FOP.

This is our largest annual contribution to research yet, and brings FOP Australia’s contributions to research to $109,000 AUD, following  $34,000 from 2015/16 fundraisers, and $30,000 from 2016/17 events.

To learn more about FOP Australia’s 2017/18 activities, read the review of 2017/18 Key Performance Indicators. And see what goals FOP Australia are working towards in our 2018/19 KPIs..

This is only possible with your support, and every dollar makes a difference. So thank you for joining, donating, fundraising or contributing in any way you can.

 

Photo: Brooke Scott, FOP Australia Secretary