Jamberry Online Fundraiser!

Published: February 3, 2017  ~   0

Shan Carty, Independent Consultant for Jamberry, is once again kindly donating her time and profits to us by organising an online fundraising event this month.

Jamberry sells high quality durable nail wraps and a variety of professional nail lacquers, gel enamels and nail care products.

Last year lots of FOP Australia members discovered the fun and easy to use products when Shan organised our first ever online fundraising event, raising $902.

Shan is hosting an online Facebook party for FOP Australia on February 28th to raise money for Rare Disease Day. Last year the online party was a huge success, lots of fun and super easy to join in, so we hope you can join us this year and help us beat last year’s total! Make sure you follow us on Facebook so you don’t miss the party!

But you don’t need to wait! From now until March 6th you can buy Jamberry products at shancarty.jamberry.com and by selecting the ‘FOP Australia Fundraiser Party’ at checkout all profits will go to FOP Australia!

What is Rare Disease Day?

Published: February 1, 2017  ~   0

International Rare Disease Day takes place on the last day of February each year to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. It is a public campaign and also seeks to raise awareness amongst policy makers, public authorities, researchers, health professionals and anyone who has a genuine interest in rare diseases.

Rare Disease Day events are run by hundreds of patient organisations all over the world that work on a local and national level to raise awareness for the rare disease community in their countries. The campaign was launched by EURORDIS as a European event and has progressively become a world phenomenon, with participation in over 80 countries in 2016. On rarediseaseday.org you can find information about the thousands of events happening around the world.

FOP Australia would love you to join our online fundraising Jamberry party to mark the day. But we also encourage members to…

  • find an event nearby
  • hold their own local event to raise awareness and funds for rare disease research
  • share the logo
  • use the the logo, profile picture, or banner on your Facebook page on Rare Disease Day
  • use the email signature for all your emails during February
  • learn more at rarediseaseday.org
  • share this information on social media to help get give rare diseases a voice!

Information and logo by EURORDIS from rarediseaseday.org used here in keeping with their stated Conditions of Use.