FOP Australia Ltd – Annual General Meeting for Members

Published: November 16, 2016 ~ 0

We are pleased to advise that the FOP Australia Ltd AGM for members will be held on Thursday 8th of December 2016 in Brisbane, details are in the attached notice of meeting.

To assist with coordination, if you wish to attend either in person, via phone or Skype (depending on availability) please visit the following site to register https://www.stickytickets.com.au/45988

Please see below for the following documents

Notice of the Annual General Meeting agm-notice_dec-16 fop-australia

Agenda of the 2016 AGM fop-australia_agm-agenda_dec-16

Minutes of the 2015 AGM fop-australia-agm-minutes-2015

Proxy Appointment form fop-australia__agm-proxy-appointment-form_dec-16

A proxy must be registered in advance of the Annual General Meeting no later than 48 hours before the AGM ie 6:30pm Tuesday 6 December 2016, details in the appointment form.

All queries to be directed to the secretary at info@fopaustralia.org

Thank you for supporting FOP Australia.

Brooke Scott

Secretary

FOP Awareness Day – April 23

Published: April 23, 2016 ~ 0

April the 23rd is celebrated as FOP Awareness Day around the globe.

On this day in 2006 the FOP gene, ACVR1, was discovered by researchers at the University of Pennsylvania School of Medicine.

Discovery of the gene allows research efforts to focus on a treatment and cure. We are extremely grateful to the numerous doctors and scientists who are working towards this goal.

You can directly support FOP Australia by:

Purchasing an Entertainment Book www.entbook.com.au/91408j5

Buy a ticket to our official launch to be held in Junehttps://www.stickytickets.com.au/36347

Sharing our Facebook posts with your network to help us raise awareness of FOP.

We will soon by announcing other ways you can donate to help our cause and we thank you for your ongoing support.

FOP Australia Launch!

Published: April 8, 2016 ~ 0

Please join us to celebrate the achievements of the first year of FOP Australia at our official launch.

Where: Fox Hotel, Acadia Room, 71-73 Melbourne Street South Brisbane

When: Saturday 4th June 2016

Time: 7-9pm, official proceedings including drinks and canapes and entertainment. 9-11pm, Please note after this time, there are no children permitted in the venue and you will need to purchase your own drinks.

Tickets:

We welcome all of our supporters to attend including family and friends who are not members of FOP Australia, please see the invitation below and forward to anyone you believe would like to support our cause.

We look forward to seeing you there!

For more information please contact us at fopaustralia@gmail.com

Thank you to our sponsor Sticky Tickets.

Entertainment book Fundraiser

Published: April 2, 2016 ~ 0

FOP Australia is selling the Entertainment Book this year to help raise funds and awareness of Fibrodysplasia Ossificans Progressiva.

The Entertainment Book includes discount vouchers for a range of restaurants, cafes, arts, attractions, hotels, shopping and travel. There is a wide variety of vouchers in the book and after only using a few you are likely to have recovered the purchase cost.

Memberships are available for most regions in Australia and New Zealand. You have 2 options when purchasing, a traditional book, or a digital membership which links with your smart phone and is compatible over 2 devices so you can share with a family member.

You can pre-order your book here.

For hard copy Entertainment Books outside of the Brisbane area please contact us to see if we have a representative in your area which will save on shipping costs.

Click here for more information.

Jamberry Facebook Event

Published: March 18, 2016 ~ 0

To kick off Rare Disease Day, FOP Australia with the help of Shan Carty – Independent Jamberry Consultant held an online fundraiser with Shan generously donating her commissions from the sales of Jamberry products to FOP Australia.

The Facebook event started on Monday 29th of February to coincide with Rare Disease day, and remained open until Sunday 13^th of March. Throughout the event Shan run random games with some great prizes.

We are thrilled to say at the end of the event, we raised $902.

Thank you to everyone who supported this event and a big thank you to Shan for her hard work and for making the event fun and enjoyable!

If you still don’t know what Jamberry is, head over to Shan’s Facebook page to find out more she is more than happy to answer your questions, and if you are based in Melbourne contact her about a Jamberry Party

Jamberry Nails Fundraiser

Published: February 27, 2016 ~ 0

FOP Australia is holding our first online fundraising event with the help of Shan from Jamberry Nails.

The event will commence at 8pm on 29th February and run through until the 13th of March.

If you haven’t heard about Jamberry before, join the group and Shan will be more than happy to answer any questions you have.

100% of Shan’s commission will be donated to FOP Australia to help patients and families raise awareness and fund research projects into FOP.

Share this event with your friends to help us raise awareness of FOP.

Welcome to FOP Australia

Published: January 29, 2016 ~ 0

Welcome to the FOP Australia blog. This blog has been created so we can provide our supporters with information on FOP Australia while our website is under construction.

Our mission is to raise awareness of Fibrodysplasia Ossificans Progressiva (FOP), provide a support network for those individuals and families affected, as well as establish and fund research towards treatment and a cure.

We welcome you to join as a member of FOP Australia, membership is $10 per year please contact us at fopaustralia@gmail.com for further information. Stay tuned for upcoming fundraising events and ways you can get involved to help us spread awareness of FOP.