We are pleased to present the FOP Australia Annual Report. for FY 19/20

Although COVID-19 has impacted our fundraising abilities in the first half of 2020, we have been incredibly lucky to raise over $50,000 which has enabled us to donate $25,000 to international research with $12,500 specifically for IFOPA’s new gene therapy program and $12,500 for IFOPA’s ACT for FOP Grant Program.

We are thankful for everyone who has supported us during 2019/20 and helped contribute to this fantastic outcome. We will continue to update the community on the progress of both these programs.

The remaining $25,000 has been allocated to support activities such as the Support Grant Program launched in July 2019 and our next patient gathering.

For FOP Awareness Day in April 2020 we launched the #FunFeet4FOP campaign with colourful rainbow socks. This campaign was a great success with photos received from around Australia and New Zealand and involvement from Ipsen. Thank you to Paul Archer for sourcing and donating the socks to us, to Alison McAlpine for selling many pairs of socks around New Zealand and to all our community that got on board by purchasing socks and sharing pictures on the day.

You can read more about what we have achieved in the report, including our financial statements and independent auditor’s report. Please join us at the AGM on Tuesday 1st of December 2020. Registrations are required at http://tix.yt/fop-australia-agm-1920

I hope that the community will continue to work with us as we aim for the goal for a cure of FOP. Now more than ever it is important for us to band together in order to achieve this.

Thank you for your continued support.