International Rare Disease Day takes every year on the last day of February to draw the globe’s attention to rare diseases and their impact on peoples’ lives. It was initially launched by EURORDIS to raise awareness amongst policy makers, public authorities, researchers, health professionals and the general community. On rarediseaseday.org you can find information about the thousands of events happening around the world and see the official Rare Disease Day video (which this year features Alexandre and Antoine from FOP France!).
So what can you do to show your support for people living with Fibrodysplasia Ossificans Progressiva on Rare Disease Day?
- Raise awareness: Take time to read our ‘My Life with FOP’ page and share the stories of people living with FOP amongst your friends and family to help our voices be heard.
- Share words of hope: See the growing word cloud on our Facebook page, and add your words of hope.
- Join FOP Australia: For just $10 per year, show your support all year long and stay in touch with the latest research news and community developments.
- Support our fundraisers: Buy a reusable Eco-cup for just $15, join our Coffee Club, or even just shop online to support FOP Australia!
- #ShowYourRare: Download profile pictures, banners, posters, email signatures and more from rarediseaseday.org/downloads .
To learn more about the goals and activities of FOP Australia, visit the ‘About Us’ section and check our our quarterly member newsletters.