Our latest quarterly newsletter is available now, just in time for Rare Disease Day on February 28! This newsletter includes suggestions for how you can mark Rare Disease Day by promoting awareness of Fibrodysplasia Ossificans Progressiva, helping FOP Australia, and advocating for those with rare diseases. In this issue:
• Eco-Cups available online now!: Help FOP Australia and the environment!
• ‘A fair go’ for Australians with rare diseases: Voice your support through Rare Voices Australia
• Research news: Learn more about clinical trials through IFOPA
• Join our new fundraising team: Help your community help those with FOP
You can also check out previous newsletters online here. Make sure you receive the FOP Australia newsletters directly by signing up as a member for just $10 per year (or free for health professionals or people living with FOP).