Our very first quarterly FOP Australia Member Newsletter is now out!
In this issue…
- Research Update from the 2016 IFOPA Drug Development Forum (including news of the first clinical trial to enrol in Australia!)
- What is Rare Disease Day?
- Jamberry Online Fundraiser begins 10th February
- Every dog has their day: Tyson at the AFL Grand Final
- Q+A with Prof Kaplan and Dr Pignolo: Transcript now online
… and more!
If you have news or information to share with the FOP community, or would like to suggest future topics, we would love to hear from you!
All members will receive this by email. If you do not receive your emailed copy of the newsletter within the next week please get in touch with your contact details.
The first of our twice-yearly clinician updates has also been released. To make sure your health care team receive these updates and stay in touch with the latest developments in FOP treatment, remind them that all clinicians get lifetime free membership to FOP Australia, just by emailing us at info@fopaustralia.org.