As part of our goal to support people living with Fibrodysplasia Ossificans Progressiva, FOP Australia is proud to launch the second round of our Support Grant Program to enable people with FOP (or their direct caregivers) to apply for direct financial support for items or activities that help them live with FOP.

The third  round of grants will open on the 1st September will close on the 30th of September 2020.

Details of how to apply will be sent to people with FOP and their caregivers that are registered with FOP Australia (so check at info@fopaustralia.org to make sure we have correct contact details!).

Please read the full Terms Of Reference before applying.

We are grateful to our independent panel of experts who will assess and rank the applications:

• Dr Felicity Collins, Geneticist, Sydney Children’ Health Network
• Mrs Georgie Hyder, Occupational Therapist, Central and Northern Adelaide Health Service
• Ms Michelle Davis, Executive Director, International FOP Association

The returning officer for this round of grants will be Jada Carr. We are very grateful to Jada Carr, who  has volunteered her time to assist in this process which will remove the issue of the returning officer and their immediate family being unable to apply for a grant. All applications will be confidential and only accessed by Jada.

If you have any questions about the program please do not hesitate to email us at info@fopaustralia.org

Picture: Cody Wilson kindly agreed to share this photo of the ramp that was built using funds from the first round of support grants. 

As part of our goal to support people living with Fibrodysplasia Ossificans Progressiva, FOP Australia are excited to announce the launch of the Support Grant Program. This pilot program will enable people with FOP (or their direct caregivers) to apply for direct financial support for items or activities that help them live with FOP.

Although 90% of of the money FOP Australia has raised so far as gone to research, we have also set aside money to provide direct support to people living with FOP. In keeping with the KPIs set for the previous 2 financial years, FOP Australia allocated $7000($3000 from 2016/17 and $4000 from 2017/18)  raised to be set aside for this purpose. During this time we have been working with experienced grant providers to develop our Support Grant Program, to ensure that there is a fair and independent process to allocate grant funds.

We are grateful for the selection panel members who have donated their time to this program:

• Dr Felicity Collins, Geneticist, Sydney Children’ Health Network
• Mrs Georgie Hyder, Occupational Therapist, Central and Northern Adelaide Health Service
• Ms Michelle Davis, Executive Director, International FOP Association

Each grant can be for up to $1000, and applications are accepted for anything that will improve the life of someone with FOP. More details about the program, including the full Terms of Reference, are available here. The first round of applications will open on the 29th July 2019, with closing date on 30th August 2019. Application forms will be sent directly to people with FOP and their caregivers, via the contact details they have registered with FOP Australia.

The first round of grants will be considered to be a trial, and afterwards, the board will review the process and feedback received to determine the future of the program and/or other support programs.