FOP Awareness Day – April 23

Published: April 23, 2016  ~   0

April the 23rd is celebrated as FOP Awareness Day around the globe.

On this day in 2006 the FOP gene, ACVR1, was discovered by researchers at the University of Pennsylvania School of Medicine.

Discovery of the gene allows research efforts to focus on a treatment and cure. We are extremely grateful to the numerous doctors and scientists who are working towards this goal.

You can directly support FOP Australia by:

Purchasing an Entertainment Book www.entbook.com.au/91408j5

Buy a ticket to our official launch to be held in Junehttps://www.stickytickets.com.au/36347

Sharing our Facebook posts with your network to help us raise awareness of FOP.

We will soon by announcing other ways you can donate to help our cause and we thank you for your ongoing support.

FOP Australia Launch!

Published: April 8, 2016  ~   0

Please join us to celebrate the achievements of the first year of FOP Australia at our official launch.

Where: Fox Hotel, Acadia Room, 71-73 Melbourne Street South Brisbane

When: Saturday 4th June 2016

Time: 7-9pm, official proceedings including drinks and canapes and entertainment. 9-11pm,  Please note after this time, there are no children permitted in the venue and you will need to purchase your own drinks.

Tickets: logo_supporter_transparent

We welcome all of our supporters to attend including family and friends who are not members of FOP Australia, please see the invitation below and forward to anyone you believe would like to support our cause.

We look forward to seeing you there!

For more information please contact us at fopaustralia@gmail.com

Thank you to our sponsor Sticky Tickets.

 

Jamberry Facebook Event

Published: March 18, 2016  ~   0

To kick off Rare Disease Day, FOP Australia with the help of Shan Carty – Independent Jamberry Consultant held an online fundraiser with Shan generously donating her commissions from the sales of Jamberry products to FOP Australia.

The Facebook event started on Monday 29th of February to coincide with Rare Disease day, and remained open until Sunday 13th of March. Throughout the event Shan run random games with some great prizes.

We are thrilled to say at the end of the event, we raised $902.

Thank you to everyone who supported this event and a big thank you to Shan for her hard work and for making the event fun and enjoyable!

If you still don’t know what Jamberry is, head over to Shan’s Facebook page to find out more she is more than happy to answer your questions, and if you are based in Melbourne contact her about a Jamberry Party