Rare Disease Day celebrations

Published: March 11, 2016  ~   0

One of the objectives of FOP Australia is to educate the community about FOP.

Rare Disease Day was held on February 29th, on this day Lara and her son Jarvis who has FOP visited Junction Park State School in Queensland wearing yellow to support the day.

Lara gave a talk about FOP and helped the school to learn about the most common clue to FOP which is malformed big toes.

Thank you to Junction Park State School for your support, we raised $443 on this day which will help us with our patient event in June.

Jamberry Nails Fundraiser

Published: February 27, 2016  ~   0

FOP Australia is holding our first online fundraising event with the help of Shan from Jamberry Nails.

The event will commence at 8pm on 29th February and run through until the 13th of March.

If you haven’t heard about Jamberry before, join the group and Shan will be more than happy to answer any questions you have.

100% of Shan’s commission will be donated to FOP Australia to help patients and families raise awareness and fund research projects into FOP.

Share this event with your friends to help us raise awareness of FOP.

Welcome to FOP Australia

Published: January 29, 2016  ~   0

Welcome to the FOP Australia blog. This blog has been created so we can provide our supporters with information on FOP Australia while our website is under construction.

Our mission is to raise awareness of Fibrodysplasia Ossificans Progressiva (FOP), provide a support network for those individuals and families affected, as well as establish and fund research towards treatment and a cure.

We welcome you to join as a member of FOP Australia, membership is $10 per year please contact us at fopaustralia@gmail.com for further information. Stay tuned for upcoming fundraising events and ways you can get involved to help us spread awareness of FOP.