April 2021 Newsletter: FOP Awareness Day Trivia Night, profiles, and more!

Published: April 20, 2021  ~   0

Check out our latest newsletter here for stories about:

  • FOP Awareness Day April 23rd: Online Trivia Night
  • FOP Awareness Day online information campaign
  • Profiles of Brooke and Oliver
  • Thank you to fundraiser Rory

Previous newsletters are available here. Make sure you don’t miss out on the latest news by subscribing to future editions – join the mailing list here.

Updated FOP Treatment Guidelines from the International Clinical Council

Published: April 16, 2021  ~   0
The International Clinical Council for FOP have provided a update to the FOP Treatment Guidelines.
The Treatment Guidelines cover many topics; a good place to start is the Executive Summary of Key Practice Points (Section II). We also suggest you review the Table of Contents where you can click any topic to be taken to that section.
There are 4 new topics this year in Section V – Special Medical Considerations in FOP:
  • COVID-19
  • Dermatology & FOP
  • Nutrition, calcium, and vitamin D guidelines
  • Aids, assistive devices and adaptations.
A general recommendation on page 5 of the Guidelines is that “Each patient should have a primary physician who is willing to consult with an FOP expert and help coordinate a local care team.” We highly suggest that you share the 2021 Guidelines with your local primary physician and care team.”
We are grateful to Drs. Kaplan and Pignolo, Corresponding Editors of the FOP Treatment Guidelines, and the other physicians and dentists from around the world who spent many hours reviewing published literature, discussing clinical practice and writing the 2021 Guidelines.
There is a link to the  Updated Guidelines April 2021 at the top of every page on this website.