FOP Awareness Day: New resources to raise awareness of FOP

In preparation for this year’s FOP Awareness Day on April 23rd we are proud to release our new flyers to raise awareness of Fibrodysplasia Ossificans Progressiva, and help spread some of our key messages.

Because of the generous support of local businesses, the new FOP Australia banner and flyers were ready for the 2018 Somerville Family Day, where Talia Wilson, Liv Sedgwick, Tyson Stanley and Daniel Petrovic proudly displayed them alongside the FOP Australia Eco-cups for sale. The new resources and the day were a big success, with cup sales, new memberships and over $200 cash donated towards FOP research! Well done team!

Do you have an upcoming event where you could do a similar stall to raise FOP awareness? We can help provide resources and ideas, and assist in making sure appropriate permits are in place for your state. Or, if you would like to raise awarenesss by sharing copies of the FOP Australia flyer via your business, friends or family, please contact us and we will happily share hard copy or PDF versions.

        

Thank you to our generous supporters:

A huge thank you to graphic designer Jarryd Bravo who donated his services free of charge, and got our banner and flyer design ready to go in no time! We recommend contacting Jarryd for your illustration, photography or graphic design needs:

Michelle Crouch from Peak Digital kindly donated printing services for 1000 high quality A5 flyers. We recommend www.peakdigital.com.au for printing in Melbourne.

Glenn May at Signforce PL provided our banner and we are thrilled with the result! For signage in Melbourne, go to www.signforcepl.com.au or their Facebook page.

Thank you also to volunteer Leonie Starnawski for assistance editing content for these resources.

We are extremely grateful to these businesses for their high quality work and efforts to help us raise awareness. But who also – by donating their time and services – have helped make sure that funds donated to FOP Australia can be used to support the global research effort and support people. We welcome any other businesses who may be interested in donating services to contact us. 

A special thank you to the FOP families who kindly allowed us to use their photos. Sharing your pictures and stories is invaluable in helping others understand why we need to beat FOP.

 

 


Newsletter Issue 6: FOP Awareness Day and more!

Our latest quarterly newsletter is being released today to mark April 23rd, FOP Awareness Day. In this issue:

  • FOP Awareness Day: The international community unite to raise awareness
  • New resources: Educational flyers to share our key messages
  • Research news: IFOPA Webinars on key community issues
  • Online fundraisers: Do you have your 2017/18 Entertainment Book yet?

You can also check out previous newsletters online here. Make sure you receive the FOP Australia newsletters directly by signing up as a member for just $10 per year (or free for health professionals or people living with FOP who contact us at info@fopaustralia.org).