Find a Health Professional

As FOP is extremely rare, few health professionals in Australia have managed a patient with this condition. The health professionals listed here have previously or currently managed patients with FOP.
Queensland

Professor Matt Brown
Princess Alexandra Hospital/Diamantina Institute
Tel: (07) 3443 7017
matt.brown@qut.edu.au

Dr Sateesh Shankaranarayana
Princess Alexandra Hospital
199 Ipswich Rd, Woolloongabba

Dr Jim McGill
Lady Cilento Children’s Hospital Brisbane
Tel: (07) 3068 1111
Jim_McGill@health.qld.gov.au

Dr Ben Whitehead
Lady Cilento Children’s Hospital Brisbane
Mobile: 1300 762 831

Dr Paul Kubler
Rheumatology Department
Royal Brisbane Hospital
Tel: (07) 3636 8111

GENERAL PRACTITIONERS

Dr Graeme Wright
Junction Road Family Practice
Bonny Place, 318 Junction Road
Clayfield Qld 4011
Tel: (07) 3857 2711

Dr Susie Yates
Ipswich Road Medical Centre
582 Ispwich Road
Annerley Qld 4103
Tel: (07) 3848 2447

NURSES

Anita Inwood
Lady Cilento Children’s Hospital
Mobile: 0412 384 989 | 0415 674 527
Anita_Inwood@health.qld.gov.au

Linda Bradbury
Princess Alexandra Hospital/Diamantina Institute
Tel: (07) 3443 7078
Mobile: 0466 779 343

AGENCIES

Montrose Access
info@montroseaccess.org.au

NDIS Qld
Fiona Anderson
Qldengagement@ndis.gov.au
Communities Queensland/NDIS

Northern Territory

Dr Annie Whybourne
Paediatrician Royal Darwin Hospital
Tel: (08) 8920 6240
annie.whybourne@flinders.edu.au

Western Australia

Dr Lydia Scott
General Physician
WA Country Health Service Kimberley
Mobile: 0477 339 987
lydia.scott@health.wa.gov.au

South Australia

Dr Josephine Thomas
General Physician
Royal Adelaide Hospital
Tel: (08) 8222 4000

New South Wales

Prof Ralph Nanan
Nepean Hospital
PO Box 63 Penrith, NSW 2751
Tel: (02) 4734 2612
ralph.nanan@sydney.edu.au

Dr Nick Wood
Paediatrician
Tel: (02) 9845 1429
nicholas.wood@health.nsw.gov.au

Dr Felicity Collins
Geneticist
Westmead Childrens Hospital Medical Centre
Tel: (02) 98452528 | (02) 98450000 | (02) 98453273
felicity.collins@sydney.edu.au

Dr Davinda Singh-Grewal
Paediatrician
Tel: (02) 9845 0000

Professor David Silence
Geneticist
Tel: (02) 9845 9780

Adult Genetics Clinic
Westmead Hospital

GENERAL PRACTITIONERS

Dr S Azizi
169 Smith Street South
Penrith NSW 2750
Mobile: 0247 225 611

Victoria

Mr Leo Donnan
Orthopaedic Surgeon
Tel: (03) 9328 3544
64 Chapman Street
North Melbourne Vic 3051
info@leodonnan.com.au

Prof Ravi Savarirayan
Murdoch Childrens Research Institute
Royal Childrens Hospital
Flemington Road Parkville Vic 3052
Tel: (03) 8341 6244
ravi.savarirayan@vcgs.org.au

International

Frederick Kaplan, MD
University of Pennsylvania
Tel: + (215) 294-9145 (clinical office)
Tel: + (215) 545-0758 (home)

Robert Pignolo, MD
University of Pennsylvania
Tel: + (215) 294-9145 (clinical office)
Tel: + (215) 834-6285 (text)

We are actively working to build the network of experienced and interested health professionals able to help patients with FOP. Currently many Australian states are not represented here. If you are a health professional with an interest or involvement in FOP management, please contact us on info@fopaustralia.org

Dental issues in patients with FOP require specialist management. Liaise with a medical FOP specialist to help find appropriate dental care.

For emergency medical information or contacts, see our page on Treatment or follow the link to the The Medical Management of FOP: Current Treatment Guidelines for Health Professionals.